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This section is a place to share stories about Coping With Charcot-Marie-Tooth Disease
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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May 2007
- charcot marie toothe disease - by Danny - (Mon, May 28 2007)
I was diagnosed with CMT when I was 42yr. and this was after I had open heart surgery. This disease has been very life altering for me as I can no longer work, and am now permanently disabled.
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- Confused - by A K - (Mon, May 28 2007)
Hi, My husdand has suffered from CMT since mid teens. Over the years we have tried to gain info in relation to the inherant risk to our three (now adult children). However we have only managed to become more and more confused.
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- Sometimes we have it easier - by Heather - (Tue, May 08 2007)
I was diagnosed with CMT around the age fourteen. I am now twenty three and have trouble with walking and vague sensation in my hands.
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- My dear son’s incurable disease - by Mjm - (Wed, May 02 2007)
Hi! my son has been diagnosed with CMT1 four years ago. He is now 8 years old and I thank God because he is attending to a normal school here in Japan.
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