Coping With Charcot-Marie-Tooth DiseaseThis section is a place to share stories about Coping With Charcot-Marie-Tooth Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
You may also Help others by sharing your story. In honor of National Cancer Survivors Day on June 1, 2008, we asked you to share your stories about surviving cancer. Read the inspiring stories we received or share your survival story and help others in the fight against cancer. To quickly access health information from your website's browser, download My dear son’s incurable disease Hi! my son has been diagnosed with CMT1 four years ago. He is now 8 years old and I thank God because he is attending to a normal school here in Japan. His foot has miraculously develop stronger, although his hands/grips are quite weak. I try to let him deal his life in a normal way just as how normal kids does because he doesn’t experience any pain at all yet. It is a great thing to share and know a lot of things about this disease as I didn’t have access before (computer). Comments
May 2007
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