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This section is a place to share stories about Coping With Charcot-Marie-Tooth Disease
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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June 2008
- They are shifting - by kristine - (Mon, Jun 09 2008)
I have had diabetes for over five years. In all this time I have talked to other diabetics as well as numerous doctors. I had also been to several “foot doctors”.
[more..]
- The effects of CMT1 - by crystal f. - (Mon, Jun 02 2008)
My daughter just turned 2 and I worry everyday that she will have this disease.
Her father is the one that carries the gene.
I was told by genetic counselers that she had a 50/50 chance of getting the gene from him. I was also told that it affects boys more than girls.
I know she will be able to live a normal life and I know she will not die from this, but I don’t know what to expect and I just feel totally unprepared and ignorant about this disease. I want to be able to help her and comfort her but how can I when Im so clueless as to what is going on inside her.
I know they can be tested for this, at what age can I do that and what kind of test is it?
[more..]
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