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This section is a place to share stories about Living with RSD
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RSD
by: stan smith
on Mon, Apr 14 2008
My name is Stan. I am 49 years old and was injured at work 2/9/06. My left hand & arm (shoulder) was mangled in in a magnetic drill press. I was taken to the hospital and stapled up from the tears in the center of my arm above my elbow. I had lacerations and cuts all over the arm. I had to follow up with workmed the next day. After six months of getting no better, I had to retain legal assistance to fight for me to get second opinions. I have had surgery to my elbow area and somewhere around a total of 62 physical therapy sessions. The doctor had released me back to work doing one handed jobs ( i was put to weed eating 8 hrs day, painting the mens toilet, etc. Previously I had been cutting and stretching trucks and trailers and welding. Many doctors have noted that I have had RSD all along the way.
I have extreme senstivity to my left arm, my shoulder huts all the time and I have no use of my hand. Even now my good hand has became affected. My handwriting is that of a 2nd graders and I can not write in length (My wife is typing my story) I have seen numerous types of doctors and now they have decided that there is nothing more they can do for me. I have took all the various meds and await to hear if they are going to approve an epidural cathereter infusion. I am not a canidate for sympathectomy ( thankful for that as I hear bad things for that procedure).
My friends have become distant and some family does not even understand what it is like for me on a day to day basis. I go no where and do nothing. I have found this web site and read all the stories and they are so familiar with my own. Is there any relief? Why is RSD so not known until a person actually has it? Even my attorney stated that RSD is very hard to prove yet I hold every symptom. My life is completely the opposite of what it was. Sometimes it feels as though it ended 2/9/06. I had believe that I would be well again after seeing doctors but they are no longer giving me any hope. It seems as though nothing relieves my pain and I feel as no one in my family understands what I deal with.
I spend my days in pain with the television as I can do nothing else. There is constant burning. The touch of my wife’s hari against me causes me pain, the touch of the sheets in bed causes me pain, the wind causes me pain and so on. I feel that it has spread to my bones. I hurt internally and all over. Is there any cure? I am unsure if I will be able to even get to see a doctor that treats RSD because it is not something that can be seen other than the scares I will carry till death, I just want to talk with other people that understand as I feel there is no one to talk with other than my wife who lives with me and see’s it day and night. How can we get through this? My balance has become worse, does this continue? When does it ever stop? How can I continue to live dealing with this? It is a demon on the body and we continue to have hope and pray.
I want to be whole again. I want to hold my wife and my grandchildren. I want to go fishing and drink a cold beer again. I want to be able sleep. My wife wants me to mow the lawn and weed eat again and put up Christmas lights on our house. Tell me, is there any hope? Is there any real help? I would like to chat to others but remember my wife is typing this one for me and from here out when I can get on to chat I will be typing with one hand and quite slowly. I apprecaite any one who would spend the time to hear me and talk with me about your RSD. Perhaps I can gain confidence and even have new friends; ones that understand. My prayers are with everyone dealing with this horrid disease.
Sincerely,
Stan & debbie
Comment on this
Comments
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Wed, Jun 04 2008
Dear Stan & Debbie,
Please please go to an RSD specialist. Between medication and either a spinal cord stimulator or an intrathecal morphine pum...Read
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Mon, Apr 14 2008
Dear Stan and Debbie
I read your posting and my heart went out to you. You see, we have been dealing with RSD since 8/15/05--very similar in time fr...Read
April 2008
- my husband has also wanted his foot removed - by BA - (Tue, Apr 29 2008)
My husband was injured on the job 5 Years ago, what started out as a broken ankle is now RSD from the waist down. His ankle did not heal and the doctor fail to notice this.
[more..]
- living with rsd - by KKR - (Tue, Apr 29 2008)
I have been living with rsd since 1995 when i had both my feet operated on for biladrial nuromas [bilateral neuromas] as soon as i woke up from the surgury i notised that my feet were cold that was very unusual for me.
[more..]
- mr - by dave - (Mon, Apr 28 2008)
4 months ago i had a cycling accident and suffered a broken hand and dislocated finger. A plaster was put on for 6 weeks together with a finger splint.
[more..]
- Don’t GIve Up - by Linda D. - (Tue, Apr 22 2008)
In May of 1991 I slipped on a wet floor and hurt my left knee. At 27 and an active mother and college student, I just figured I would be sore the next day or two.
[more..]
- What Now? - by Sherica - (Mon, Apr 21 2008)
I was in a car accident in June of last year. I now have partial seizures herniated and bulging disc in my upper and lower back.
[more..]
- My life has been severely changed. - by Michael - (Mon, Apr 21 2008)
In June 1989 I had a left knee arthroscopic surgery and was put to sleep. When I awoke I had such SEVERE BURNING PAIN in that leg that I could not lower it to the ground.
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- living with RSD and what helped me - by sbb - (Mon, Apr 21 2008)
I am a 39 year old female and work as a nurse. I was coming down steps outside my apartment when they dropped out from under me and my left foot was struck with a iron step. After multiple foot surg. I developed RSD.
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- RSD - by ANESSA - (Fri, Apr 18 2008)
HI, I AM A 37 YR OLD FEMALE, WHO WAS INJURED IN 2002, WHEN I WAS WORKING AS A VET ASSISTANT, MY BOSS AND I WERE ATTENDING TO A ILL CAT, WHO USUALLY WAS A NICE CAT BUT VERY ILL AT THE TIME, WE PUT A IV BACK INTO THE CAT, (TRIED TO) BUT INSTEAD HE HAD LATCHED ON TO MY LEFT HAND AND WRIST AND BIT ME 17 TIMES, THE DR STOPPED COUNTING.
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- I’m sorry for your pain of RSD/CRPS, lets fight this thing together!! - by kriskaleigh - (Fri, Apr 18 2008)
I was injured over 3 years ago @ work when some equipment fell on my right shoulder & hand.
I not only had the original tearing and damage within the shoulder, I immediately had edema, purple-blue skin mottling
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- Diagnosed with RSD? WHAT? - by SHARON - (Wed, Apr 16 2008)
I am a 37 year old women and life as I knew it would change….
MY STORY
FEB 2007-Well, it started back in Febuary 2007 when a car slid on ice and headed for my LandRover.
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- One of the lucky ones….so far - by Sherry - (Wed, Apr 16 2008)
I had surgery for pronator syndrome on both arms. This was almost 3 years ago. My left had kept burning, finally, reluctantly my surgeon (if you want to call him that) wrote on an appointment card “RSD early” and told me to give this to my therapist.
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- RSD - by Tamika - (Mon, Apr 14 2008)
I was told i had RSD about 3years ago. since then i’ve had injection in my neck and 5 operations.The pain from RSD is so bad.
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- RSD - by stan smith - (Mon, Apr 14 2008)
My name is Stan. I am 49 years old and was injured at work 2/9/06. My left hand & arm (shoulder) was mangled in in a magnetic drill press.
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- I DID’NT KNOW WHAT RSD WAS - by MARIA D - (Fri, Apr 11 2008)
I WAS DIAGNOSED WITH RSD 2 YEARS AGO IN MY LT LEG AND 6 MOS IN MY A RIGHT ARM THE PAIN WAS PAINFUL THE BURNING DIFFERENT COLOR OF MY SKIN CANT TOUCH MY LEG OR ARM.
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- living with rsd - by andrea - (Thu, Apr 10 2008)
hi i’m a 36year old female who has had rsd for 3 years now.i have had 2 strokes and a heart attack from this it seems hard to go on at time but i do .
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- bloody hell - by cc - (Wed, Apr 09 2008)
i’m wondering if anyone has considered, or actually decided to have their foot below he knee] removed due to rsd.
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- Darn that Manhole - by Christine - (Tue, Apr 08 2008)
On December 2, 2006, I went out with my husband and a friend of ours for my birthday. We took the trolley downtown so that we wouldn’t have to drive at all. We had such a wonderful evening out. Patrick danced (club dancing type) for the first time in 13 years. It was magical.
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- Felicity - by Felicity - (Mon, Apr 07 2008)
I am a 54 year old female, investigation for RSD started in 2001 and some years later got the diagnosis. There is hope, together, sharing our stories, we can also share our strength hope & courage.
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- RSD - by Rick - (Fri, Apr 04 2008)
My wife has always been an active person. Loves to walk and dance and garden. Five years ago she pushed a bucket of compound spackle with her foot which having her hands full.
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- New to RSD forum - by Bill - (Wed, Apr 02 2008)
Back on September 29 ‘07 I fell from a ladder and shattered my calcaneus (heel). Had surgery to repair it (titanium plate and 12 screws). The injury has since healed almost fully according to the docs and MRI’s, however my foot still swells and aches at times.
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