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Diagnosed with RSD? WHAT?


by: SHARON on Wed, Apr 16 2008

I am a 37 year old women and life as I knew it would change….

MY STORY

FEB 2007-Well, it started back in Febuary 2007 when a car slid on ice and headed for my LandRover. As a complete reaction…I tried to stop it…with my hand. I thought I was ok and later went to the ER for Xrays. The Xrays came back negative for a fracture..1600.00 later.. So, I did what anyone else would do…Give it time to heal…guess it was a sprain.

OCT 2007-Well…after about 8 months, and getting health insurace…I decided to get my wrist reevaluated. It was still slightly swollen and seemed now to be getting worse. I had Xrays taken again and this time again showed no fracture..yet some abnomral bone density. They recommended an MRI ,,more tests…more money.

NOV 2007-Now, the MRI results are in…I had a fractured scaphoid (wrist) done. But it seems that there was a loss of blood supply which caused Avascular Necrosis. The bone had died. I needed surgery…and it was complicated.

DEC 2007-I had surgery to remove the scaphoid bone and underwent a four corner fusion. I had 3 screws place in to hold four wrist bones from collapsing or (falling down). I had stitches removed and was placed in a cast for 6 weeks.

Jan 2008-I had my cast removed and started physical Therapy It was very painful, but I was on the road to recovery…or so I thought.

Feb 2008- After continued severe pain in my hand and wrist..discoloration of my skin….extreme temperature changes…and severe skin sensitivity, I was diagnosed with RSD What is it? Reflex Sympathetic Dystophy. It is a condition where as the nervious system continues to send pain messages to the brain. My doctor described it well. When you put your hand on something HOT…the message is sent to the brain…YOUR HAND IS BURNING! I almost felt like I was loosing my mind…There is no cure …only hope that maybe if treated right away with nerve blocks and medication…there is hope for remission.

March 2008- I have been scheduled to receive 4 Stellate Ganglion Blocks once a week for 4 weeks. These injections are given in the neck to the back of the spine into the sympathetic nerves…in hopes to numb the messages being sent to the brain. I have received 2 injections…with no response to the treatment. My RT hand is 76 degrees F while my arm remains 90 degrees F. The burning sensation and stabbing pain in my wrist continues. My hand is persistantly discolored a purple/blue. I have now been placed on another medication called Neurontin along with my Oxycodone. I am also scheduled for an EMG (peripheral nerve test) at the end of the month. I continue PT 2 times a week and follow up with my Ortho surgeon monthly…along with a Physiciast. It appears that on my latest Xray, a wrist bone above the one that was removed

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April 2008

  • my husband has also wanted his foot removed - by BA - (Tue, Apr 29 2008)
    My husband was injured on the job 5 Years ago, what started out as a broken ankle is now RSD from the waist down. His ankle did not heal and the doctor fail to notice this. [more..]
  • living with rsd - by KKR - (Tue, Apr 29 2008)
    I have been living with rsd since 1995 when i had both my feet operated on for biladrial nuromas [bilateral neuromas] as soon as i woke up from the surgury i notised that my feet were cold that was very unusual for me. [more..]
  • mr - by dave - (Mon, Apr 28 2008)
    4 months ago i had a cycling accident and suffered a broken hand and dislocated finger. A plaster was put on for 6 weeks together with a finger splint. [more..]
  • Don’t GIve Up - by Linda D. - (Tue, Apr 22 2008)
    In May of 1991 I slipped on a wet floor and hurt my left knee. At 27 and an active mother and college student, I just figured I would be sore the next day or two. [more..]
  • What Now? - by Sherica - (Mon, Apr 21 2008)
    I was in a car accident in June of last year. I now have partial seizures herniated and bulging disc in my upper and lower back. [more..]
  • My life has been severely changed. - by Michael - (Mon, Apr 21 2008)
    In June 1989 I had a left knee arthroscopic surgery and was put to sleep. When I awoke I had such SEVERE BURNING PAIN in that leg that I could not lower it to the ground. [more..]
  • living with RSD and what helped me - by sbb - (Mon, Apr 21 2008)
    I am a 39 year old female and work as a nurse. I was coming down steps outside my apartment when they dropped out from under me and my left foot was struck with a iron step. After multiple foot surg. I developed RSD. [more..]
  • RSD - by ANESSA - (Fri, Apr 18 2008)
    HI, I AM A 37 YR OLD FEMALE, WHO WAS INJURED IN 2002, WHEN I WAS WORKING AS A VET ASSISTANT, MY BOSS AND I WERE ATTENDING TO A ILL CAT, WHO USUALLY WAS A NICE CAT BUT VERY ILL AT THE TIME, WE PUT A IV BACK INTO THE CAT, (TRIED TO) BUT INSTEAD HE HAD LATCHED ON TO MY LEFT HAND AND WRIST AND BIT ME 17 TIMES, THE DR STOPPED COUNTING. [more..]
  • I’m sorry for your pain of RSD/CRPS, lets fight this thing together!! - by kriskaleigh - (Fri, Apr 18 2008)
    I was injured over 3 years ago @ work when some equipment fell on my right shoulder & hand. I not only had the original tearing and damage within the shoulder, I immediately had edema, purple-blue skin mottling [more..]
  • Diagnosed with RSD? WHAT? - by SHARON - (Wed, Apr 16 2008)
    I am a 37 year old women and life as I knew it would change…. MY STORY FEB 2007-Well, it started back in Febuary 2007 when a car slid on ice and headed for my LandRover. [more..]
  • One of the lucky ones….so far - by Sherry - (Wed, Apr 16 2008)
    I had surgery for pronator syndrome on both arms. This was almost 3 years ago. My left had kept burning, finally, reluctantly my surgeon (if you want to call him that) wrote on an appointment card “RSD early” and told me to give this to my therapist. [more..]
  • RSD - by Tamika - (Mon, Apr 14 2008)
    I was told i had RSD about 3years ago. since then i’ve had injection in my neck and 5 operations.The pain from RSD is so bad. [more..]
  • RSD - by stan smith - (Mon, Apr 14 2008)
    My name is Stan. I am 49 years old and was injured at work 2/9/06. My left hand & arm (shoulder) was mangled in in a magnetic drill press. [more..]
  • I DID’NT KNOW WHAT RSD WAS - by MARIA D - (Fri, Apr 11 2008)
    I WAS DIAGNOSED WITH RSD 2 YEARS AGO IN MY LT LEG AND 6 MOS IN MY A RIGHT ARM THE PAIN WAS PAINFUL THE BURNING DIFFERENT COLOR OF MY SKIN CANT TOUCH MY LEG OR ARM. [more..]
  • living with rsd - by andrea - (Thu, Apr 10 2008)
    hi i’m a 36year old female who has had rsd for 3 years now.i have had 2 strokes and a heart attack from this it seems hard to go on at time but i do . [more..]
  • bloody hell - by cc - (Wed, Apr 09 2008)
    i’m wondering if anyone has considered, or actually decided to have their foot below he knee] removed due to rsd. [more..]
  • Darn that Manhole - by Christine - (Tue, Apr 08 2008)
    On December 2, 2006, I went out with my husband and a friend of ours for my birthday. We took the trolley downtown so that we wouldn’t have to drive at all. We had such a wonderful evening out. Patrick danced (club dancing type) for the first time in 13 years. It was magical. [more..]
  • Felicity - by Felicity - (Mon, Apr 07 2008)
    I am a 54 year old female, investigation for RSD started in 2001 and some years later got the diagnosis. There is hope, together, sharing our stories, we can also share our strength hope & courage. [more..]
  • RSD - by Rick - (Fri, Apr 04 2008)
    My wife has always been an active person. Loves to walk and dance and garden. Five years ago she pushed a bucket of compound spackle with her foot which having her hands full. [more..]
  • New to RSD forum - by Bill - (Wed, Apr 02 2008)
    Back on September 29 ‘07 I fell from a ladder and shattered my calcaneus (heel). Had surgery to repair it (titanium plate and 12 screws). The injury has since healed almost fully according to the docs and MRI’s, however my foot still swells and aches at times. [more..]
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