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RSD early diagnosis
by: josephine on Mon, Nov 10 2008
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I had a very bad break to my right wrist and developed what I learned is RSD or complex regional pain syndrome. I was fortunate enough to get an early diagnosis that allowed me to research on the internet to find something that would help me. After several months my pain was very much reduced, I take only one anti-inflammatory per day, more when needed; the colour of my hand is returned to more normal; the severe swelling has more or less gone.

I think the early diagnosis was really key - but none of the doctors I saw during my treatment diagnosed it - I was fortunate enough to be seeing a natural therapist who told me what I was dealing with. In case it might be of use to others, these are the things that I found helpful:

- doing the exercises prescribed to me, no matter that it was painful; i kept focused and would put both hands through the same exercises when feasible - helped take my mind off the one that was painful ! I also visualised the full range of motion I was aiming for

- continuously moving my hand and fingers throughout the day no matter what i was doing, not just at the time i was doing the prescribed exercises. this prevented my fingers from seizing up further and helped reduce the swelling

- CASTOR OIL ‘PACK’ - this was highly beneficial in the early stages of helping to clear up the severe swelling. basically you soak a piece of cloth in castor oil, warm it, put it around the affected area, cover it with plastic wrap and apply heat (eg. hot water bottle or heating pad). I used to sit with this for one or two hours each evening for amazing results. you can find all kinds of information on the internet on the benefits of castor oil packs

- a homeopathic anti-inflammatory cream that i got from the health food store - often used by people with arthritis, it helped reduce pain

- st john’s wort oil that i used to massage my hand and fingers, holding up my hand while massaging down from the tip of the fingers

- alternating putting my hand in the double kitchen sink, one filled with hot and one with cold water

I still have a ways to go, but I don’t sit at my desk crying with pain any more, and my hand looks more or less normal - so that’s big progress !

Good luck to everyone suffering this terrible pain.


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Comments
  1. Fri, Aug 28 2009
    [quote="alisong"]My son had RSD for 3 months and is now cured thanks to this physiatrist in NY. If you live anywhere near NY and are interes...Read
  2. Thu, Feb 19 2009
    My name is Bev and I too have developed RSD in my hand due to a compound fracture of my right wrist and 2 broken bones in my right forearm of which on...Read
  3. Tue, Jan 13 2009
    My son had RSD for 3 months and is now cured thanks to this physiatrist in NY. If you live anywhere near NY and are interested in more info you can re...Read
  4. Wed, Dec 03 2008
    I foundyour suggestions helpful to try, especially the swelling reduction. I have developed some skin and tissue reactions to wrist fracture/surgery ...Read

November 2008

  • 3 years in and Scared can you help me? - by Snowflake - (Mon, Nov 24 2008)
    3 years ago I met a man and fell in love at first sight. I know how corny that sounds, and am not a overly romantic fairy-tale driven woman. I have spent the past three years in this relationship and I knew upon entering the relationship that he had RSD. [more..]
  • Resentment - by Cheryl - (Mon, Nov 24 2008)
    Hello my name is Cheryl, it has only been a little over a year and half that I am suffering from RSD but it seems like a lifetime. [more..]
  • 14 years with rsd - by maryann - (Fri, Nov 21 2008)
    hi my name maryann. I got rsd 14 years ago while working at a deli . I sliced my two finger on my right hand and it went down from there. [more..]
  • Dealing WIth RSD - My SECRET!! - by Sarah P. - (Fri, Nov 21 2008)
    Hi my name is Sarah. I am 15 years old and have had RSD for a little over a year. [more..]
  • My 8 year Old Daughter - by michelle - (Fri, Nov 21 2008)
    My 8 year Old daugher had broke her leg 2 years ago and was suffering ever since with pain and swelling and bruising. [more..]
  • RSD - by Ursula S. - (Thu, Nov 20 2008)
    I have been suffering from RSD for the past 13 years during which time I have made some remarcable discoveries, truly of phenomenal magnitude especially as it relates to vision changes. [more..]
  • New to all of this - by Caroline - (Tue, Nov 18 2008)
    Hi, my name is Caroline, I am 42 years old, happily married with two daughters and living in Canada. Today I found out that I have RSD. [more..]
  • Changed Forever By RSD - by Cathy L.H. - (Tue, Nov 18 2008)
    Hello everybody. I’m writing my story in the hopes that it will help others that live with RSD or any other chronic/terminal disorder, pain oriented or otherwise. [more..]
  • I can fight this - by Linda - (Thu, Nov 13 2008)
    Turned 40 this year. Did not have a problem with turning 40 but wow this has been quite the year. Broke my left foot in August (5th metatarsal break) was put in a aircast. [more..]
  • Hi It’s Chris again!! - by Chris - (Thu, Nov 13 2008)
    I wrote you guys and girls, all suffers of rsd,a lettter about what i have been through with this terrible, grossly misunderstood disease.I wrote it in October so if you wish to read it just click on archives and then click the month of October. [more..]
  • Mr. Rsd - by Matt - (Thu, Nov 13 2008)
    Rsd can be hard for a regular Dr. to diagnose. I lived with it for 8 years and was put on 400 MG of oxycontin a day morphine patches. I was zombie and lost my wife, kids and business. [more..]
  • RSD - by SMB - (Wed, Nov 12 2008)
    hello all, i have always been active, sports, bike riding never one to sit around, i have hurt myself over the years especially my left foot. [more..]
  • RSD early diagnosis - by josephine - (Mon, Nov 10 2008)
    I had a very bad break to my right wrist and developed what I learned is RSD or complex regional pain syndrome. [more..]
  • living and fighting r.s.d - by amanda - (Mon, Nov 10 2008)
    my story started 17 years ago along time i was i was mature studient a costume deisgner had a great skill till this started yes and hell began, [more..]
  • My life with RSD - by Tiffany - (Fri, Nov 07 2008)
    Hi all I am a 20 year old female and I attend Nassau community college and studying criminal justice (Forensic Science). I had a major knee surgery when I was 14, everything seemed to be okay until one morning I woke up with sting sharp pain. [more..]
  • discovery of rsd - by ah - (Thu, Nov 06 2008)
    diagnosed with degenerative arthritis of left shoulder and knees at 53, after ankle sprain in oct. 08, rsd seemed to be developing symptoms. [more..]
  • Living with RSD…. - by Heather - (Wed, Nov 05 2008)
    I am a 29 year old single mother of 2. More than a year ago, I woke up with a serious pain in my neck. Just thinking I slept on it wrong, I let the pain worsen over a few months. Finally submitting to the pain and the loss of function of my right arm, I went to the doctor to find out I had a ruptured disc that was pressing on my spinal cord. [more..]
  • Sister with RSD - by Amy P. - (Wed, Nov 05 2008)
    My name is Amy and I have a sister that has been battling RSD off and on (mostly on) since she was a teenager. [more..]
  • 10 seconds for change….. - by Julie - (Wed, Nov 05 2008)
    Hello, my name is Julie and I am a wife and mother. I am 36 years old and I live with RSD of my knee. [more..]

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