Healthcommunities.com

Home Health Topics Health Reports Learning Centers Find a Doctor
Quit Smoking

Living with RSD

This section is a place to share stories about Living with RSD

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


RSD…33 going on 80
by: Leigh on Thu, Dec 18 2008
Facebook Twitter

All through high school I was active. I played football, wrestled, and was on the weight lifting team. I was never tall, only 5′10″, but always strong and active. Since I was 13 I worked with my dad doing construction over the summers, as well as working various farms during the hay season and cutting many lawns for the locals that hired me.

Once I graduated high school, I went on to college. My financial aid got messed up somewhere along the line, and I had to drop out after 2 semesters due to lack of money to continue. I went to work for a sawmill, where I worked for almost 10 years.

Then one day, I was doing something I had done more times than I care to think…I climbed up 2 stories above the stacking line to unjam a cant from the edger, and it kicked on. The cant (a debarked and squared 16′ white oak log) came flying out of the machine and hit me in the face and chest, breaking 6 ribs, my sternum, jaw, cheekbone, eyesocket and knocking me 2 storied below. I fell, landing on a steel I-beam so hard I twisted around it and fractured several vertebrae. I was treated for my back, and of course the various other breaks bumos and bruises, but something kept messing with me even more than the pain of my fall…my right leg began burning, swelling, and changing hot to cold all the time.

I went to 5 different doctors for 3 years and all of them gave me a dozen different possible explanations, but nothing helped. The one even told me it was a fear of returning to work, and it was all in my head. He tried to make me see a shrink, because he said there was nothing physically wrong, except a little lingering scar tissue and arthritis in my back. Finally, i found a doctor that knew what she was doing. The first visit she saw me, within 5 minutes of talking to me, immediatley diagnosed me with RSD This was a little over 6 months ago.

Since then, I have steadily gotten worse, in spite of her best efforts to treat me with drugs, therapy, and even pain injections into my spine. Now my left leg is getting the same problem. I cannot walk without a cane, I can’t function hardly at all. The arthritis in my back has also gotten very bad, and what helps one problem only makes the other worse.

My wife has no idea what to make of me. I always was the clown, the joker, the guy that everyone came to for a laugh. Years ago I had one coworker ask me if I even had a temper, because I was pretty much the most mellow happy-go-lucky person on the planet. But now i find myself depressed a lot, and even snapping at my wife and kids for no reason. There are days it hurts so bad I pray to die, because i can’t stand the pain, or the fact i cannot do the things with my kids I always dreamed of doing. I can’t throw a ball with my son, or go for walks with my daughter, I can’t teach them things like how to ride bike or climb the big oak in the front yard.

We lost our house, I lost my job, and we are now living with my mother-in-law because I am hoping that my application for disability comes through. My wife seems to think that 90% of my pain is made up or over exaggerated, and i can’t make her understand that while I look ok, I feel so horrible. I am having trouble even getting to the bathroom alone, and standing long enough to shower wears me out for the day. I have no idea how it can get worse, but the doctor told me it will. I am in stage 3 of RSD and she says there is nothing they can do to help me now. I take neurontin, but it has become inneffective at best, and the only relief i get is temporary from a TENS unit, when i can get my wife to help me put it on.

Because i cannot get around or be active, I have gained a lot of weight, which just maked it worse. I am embarrassed to even go out of the house, because of how i look and how i have to move to walk. Any ideas how i can get my wife and family to understand I am not lazy and being mean, that I simply cannot function? I don’t even feel like a man anymore. I have at times seriously entertained the idea of ending it myself, but I can’t because I am afraid of what my kids may think of me. But yet, how can I embarrass them by showing up to their school functions, boy scouts and girl scouts functions, etc. I live in a small town, and there is no one else here that has the same problem. No one gets how badly this thing eats you away. Any words of advice wisdom, would be a huge help.


Facebook Twitter

Comment on this

Comments
  1. Sat, Dec 20 2008
    Hello, thank you for responding. I SURELY understand all you are saying. I deal with it daily. I have been fortunate that my husband understands an...Read
  2. Thu, Dec 18 2008
    Thanks for the reply. I saved your email address and will try to write soon. I think she (my wife) just doesn't understand what this thing does to a...Read
  3. Thu, Dec 18 2008
    Hello, I also have RSD, just about two years now. Sure has changed my life around!!!!! I had tears reading your story and would like to encourage yo...Read

December 2008

  • My RSD story - by NIKKI - (Fri, Dec 26 2008)
    I have R.S.D with Rhuematoid [Rheumatoid] Arthritis and Fibromyalgia to name a couple of my severe conditions (all developed from a fall on ice). I broke my left ankle on February 1, 2003. [more..]
  • my 13yr old daughter was just diagnosed with crps - by Danielle - (Tue, Dec 23 2008)
    about the middle of nov. of this year my daughter’s right arm started to hurt and swell up. [more..]
  • RSD/CRPS - by Mike - (Fri, Dec 19 2008)
    Hi all my name is Mike and I have RSD/CRPS for 14years. [more..]
  • RSD…33 going on 80 - by Leigh - (Thu, Dec 18 2008)
    All through high school I was active. I played football, wrestled, and was on the weight lifting team. I was never tall, only 5′10″, but always strong and active. [more..]
  • long and windy road - by la - (Thu, Dec 18 2008)
    well it began with the misdiagnosis of a problem with my brain from one doctor and then another doctor just didn’t beleive that someone would be in so much pain and just HAD to be a drug seeker and then finally with the blessing of the right doctor it was inevitable that rsd was the culprit of everything. [more..]
  • RSD in Hawaii - by april - (Tue, Dec 16 2008)
    Aloha, I am searching for a group or person in Hawaii I can connect with. My roller coaster ride with RSD started back in spring 2007. [more..]
  • RSD - by CINDY R. - (Mon, Dec 15 2008)
    I broke my fibula. After the doctor on call didn’t come to the ER after the ER doctor called him, with his instructions, they applied a splint. [more..]
  • My Father - by AC - (Mon, Dec 15 2008)
    MY father was misdiagnosed for almost four years with a variety of different things. However, in the past year we have now only found the problem…which is RSD, but have yet to recieve the help and soultion for this problem. [more..]
  • getting really depressed with RSD - by wendy - (Thu, Dec 11 2008)
    this is the third time i have wrote here my first was in may 08 after being diagnosed with rsd in march [more..]
  • Story Without an Ending - by Carol - (Wed, Dec 10 2008)
    After reading lots and lots of stories, I finally decided to post mine. In October of 2006, I was diagnosed with an inflamed nerve in my leg. [more..]
  • From on the go… to slow - by DN - (Tue, Dec 09 2008)
    I was told today that I have RSD. I injured my right foot at work last month by a ladder falling on it. My driving foot. [more..]
  • The party /and engagement that changed my life - by Kathy - (Tue, Dec 09 2008)
    I gave a 60th birthday party,i was the one who got the suprise i was asked to be married, i was bumped on the dance floor (i was just walking across the floor) and was hip checked i didn’t expect it i fell breaking my bones very bad in my wrist, had a pin on one side and they had to put a plate in. [more..]
  • i have rsd - by charles - (Fri, Dec 05 2008)
    this is a painful to have but i have found so help in drinking orange juice and alot of fruit and thinking about anything but your pain [more..]
  • Robert’s journey - by Robert - (Tue, Dec 02 2008)
    My name is Robert Roebuck I am 44 years old was diagnosed with RSD [more..]
  • The End Of A Soldier - by Cheri - (Tue, Dec 02 2008)
    My previous career was in the US Army as a senior NCO, and during a hiking expedition, I fell and injured my legs and back. Within three months of the accident, I was diagnosed with RSD in my right leg. [more..]

Archives:

The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)

Healthcommunities.com

This website is certified by Health On the Net Foundation. Click to verify.This site complies with the HONcode standard for trustworthy health information:
verify here.



MediZine's Healthy Living™ Remedy® Diabetes Focus® MDMinute® Remedy®